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| dcc:pdpsol:publishinghsd [2026/05/11 14:41] – marlon | dcc:pdpsol:publishinghsd [2026/05/13 13:29] (current) – alba |
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| {{indexmenu_n>5}} | {{indexmenu_n>5}} |
| ===== Archiving and Publishing Human Subject Data ===== | ===== Archiving and publishing human subject data ===== |
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| ==== Introduction ==== | ==== Introduction ==== |
| ==== De-identifying data before archiving or publishing ==== | ==== De-identifying data before archiving or publishing ==== |
| Often, it is not necessary to keep all collected data: | Often, it is not necessary to keep all collected data: |
| * Limit the (personal) data and materials you archive to the ones that you need for verification of your research. Follow the procedures in the [[datadesctruction|destruction protocol(s)]] that you designed. Add these protocol(s) to your data package, publication package or archive. (e.g. anonymised consent forms can be archived, while consent forms containing personal data should be de-identified or destroyed in accordance with the UG protocol) | * Limit the (personal) data and materials you archive to the ones that you need for verification of your research. Follow the procedures in the [[datadesctruction|destruction protocol(s)]] that you designed. Add these protocol(s) to your data package, publication package or archive. (e.g. anonymised consent forms can be archived, while consent forms containing personal data should be de-identified or destroyed) |
| * [[de-identification|De-identify]] data before publishing, while also keeping in mind the usability of your dataset. | * [[de-identification|De-identify]] data before publishing, while also keeping in mind the usability of your dataset. |
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| === Level 2: contains personal data in de-identified form (not anonymized) === | === Level 2: contains personal data in de-identified form (not anonymized) === |
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| Publish your [[de-identification|de-identified dataset]] and supporting materials on [[https://www.rug.nl/digital-competence-centre/research-data/archive-and-publish/dataversenl|DataverseNL]], under restricted access. Determine the terms of use for external parties that would like to reuse your data. [[https://www.rug.nl/library/open-access/how-to-publish-open-access/creative-commons-licenses|Creative Commons licenses]] are not suitable for data containing personal data with access restrictions. Make sure that these terms of use align with the informed consent. | Publish your [[de-identification|de-identified dataset]] and supporting materials on [[https://www.rug.nl/digital-competence-centre/research-data/archive-and-publish/dataversenl|DataverseNL]], under restricted access. Determine the terms of use for external parties that would like to reuse your data. [[https://www.rug.nl/library/open-access/how-to-publish-open-access/creative-commons-licenses|Creative Commons licenses]] are not suitable for data containing personal data with access restrictions. [[https://www.rug.nl/digital-competence-centre/contact/|The UG DCC]] can assist in developing a procedure for making these data available for reuse under well-defined conditions. Make sure that these conditions align with the informed consent. |
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| === Level 3: contains sensitive personal data === | === Level 3: contains sensitive personal data === |
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| When your data still contains highly sensitive information, do not publish this data openly or with access controls in a data repository. Instead, [[https://www.rug.nl/digital-competence-centre/research-data/archive-and-publish/|archive your data]] in accordance with the [[https://www.rug.nl/digital-competence-centre/research-data/policies|research data policy of your faculty or institute]]. The [[https://www.rug.nl/digital-competence-centre/contact/|UG DCC]] can assist in developing a procedure for making these sensitive data available for reuse under well-defined conditions. Make sure that these conditions are in line with the informed consent. | When your data still contains highly sensitive information, do not publish this data openly or with access controls in a data repository. Instead, [[https://www.rug.nl/digital-competence-centre/research-data/archive-and-publish/|archive your data]] in accordance with the [[https://www.rug.nl/digital-competence-centre/research-data/policies|research data policy of your faculty or institute]].[[https://www.rug.nl/digital-competence-centre/contact/|The UG DCC]] can assist in developing a procedure for making these sensitive data available for reuse under well-defined conditions. Make sure that these conditions are in line with the informed consent. |
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| <color #7092be>→</color>[[https://doi.org/10.34894/R1WHEA |Corpus PINO: A spoken language resource for multiple simultaneous comparisons. (Cristiano et al., 2024)]] | <color #7092be>→</color>[[https://doi.org/10.34894/R1WHEA |Corpus PINO: A spoken language resource for multiple simultaneous comparisons. (Cristiano et al., 2024)]] |
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| //“Corpus PINO is a resource designed for research on different styles of spoken Italian and Neapolitan dialect. The corpus consists of anonymized audio recordings and ELAN time-aligned orthographic transcriptions involving fifty participants (stratified by age, gender, and education level). …. PINO is a contribution to the preservation of the local cultural heritage and of a minority language, i.e., an Italo-Romance dialect. It attests the lives, memories, opinions, traditions, practices, and attitudes of fifty members of this community.”// | //“Corpus PINO is a resource designed for research on different styles of spoken Italian and Neapolitan dialect. The corpus consists of [de-identified] audio recordings and ELAN time-aligned orthographic transcriptions involving fifty participants (stratified by age, gender, and education level). …. PINO is a contribution to the preservation of the local cultural heritage and of a minority language, i.e., an Italo-Romance dialect. It attests the lives, memories, opinions, traditions, practices, and attitudes of fifty members of this community.”// |
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| ===Score the sensitivity of your data and supporting materials === | ===Score the sensitivity of your data and supporting materials === |
| * **Level 1 (open)**: Materials used during fieldwork (forms, stimuli, questionnaire, tables, etc.) | * **Level 1 (open)**: Materials used during fieldwork (forms, stimuli, questionnaire, tables, etc.) |
| * **Level 2 (restricted)**: Transcriptions of all the activities the speakers carried out, organized by speaker | * **Level 2 (restricted)**: Transcriptions of all the activities the speakers carried out, organized by speaker |
| * **Level 3 (restricted on UG premises):** Audio data | * **Level 3 (restricted on UG premises):** De-identified audio data |
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